Tag Archives: Conditions and Diseases

Where There is Darkness, There is Light.

11 Jan

Have you ever wanted to stop time and literally spend an entire day in just one moment? Soaking it in, reveling and trying to imprint the details in your life memory bank forever? I have and its been happening a lot lately.

I equate it to getting older, being more aware of mortality, aging, being in love, experiencing loss and learning hard truths and realizing how quickly things can change.I have never been good with change but always seem to be in a constant state of it. Life just simply goes by too fast. There is no formula, surgery, potion or elixir that can change that.

As Chris Pureka says, Time is the Anchor, Change is a Constant.I had an entirely different post planned about fashion and my beloved Green Bay Packers but that will need to wait a day. I awoke this morning to the news that a close friend’s mother and a singer songwriter we love and follow are both facing one of life’s hardest realities; cancer.

I was struck with their honesty and perspective so much so that I felt compelled to share it with you. Here they are, two different people, two different versions their paths anonymously connected by unfortunate news and the courage to carry on.

As we all know, Cancer doesn’t care. It sees no color, gender, age, race or sexual orientation. It is undiscriminating, taxing and incredibly selfish. It is a real life monster under the bed HOWEVER, in the grandest sense possible, there is always hope. Hope breeds positivity and lightness and I think reaches far deeper than any treatment or remedy.The power of positive thinking, love and tenacity goes a long way. As my friend Heather eloquently said 4 years ago when she received her diagnosis, “I am going to kick cancer’s ass, it has messed with the wrong girl.” As we speak, she is pregnant and healthy.I consider this news a reminder of what is important. A re-balancing of my life’s priorities and focus. A necessary nudge to reach out, educate myself and be a lending ear and shoulder for those in my life who might need some extra support.

Read the brave words and perspectives of the affected who have now become warriors in their fight back to healthy.

Luella says…C Stands for Change and Courage.

Our close friend Sandra said,

“My family is about to embark on a challenging journey. It will be up to each person to transform the situation into an opportunity for faith, hope, and happiness. My mom’s cancer is back. It’s in her liver and lungs. Wanted to share this early before it became too overwhelming to share.”

Doris Muramatsu of GIRLY MAN writes,

“One image that keeps circling my mind is of Arthur’s Seat in Edinburgh, Scotland. It’s an 823 ft hill in the middle of the city, climbable from almost any direction. The views up top are breathtaking, you feel otherworldly and closer to God. It was climbing this hill back in October 2010 when I knew something in me had shifted. I was no longer a healthy person. Perhaps it was the moment when my chromosomes decided to mutate; I’d like to think they’d pick a transcendent experience such as this hike to do so rather than during one of my more earthly chores such as brushing my teeth.  Of course, I don’t even think I was conscious of this shift. All I knew was that my legs felt like cement blocks and my breath huffed double time with every step I took. I had to stop every 2 minutes or so to regain my breath and couldn’t understand why or how so many people could just amble up the hill with such ease. But the sun, making a rare appearance, shone down on JJ and me, and the highland grass shimmered. Something was beckoning me to keep moving forward because to stop would admit defeat. Sure, my legs and ankles swelled daily for seemingly no reason, and sure I was dangerously short of breath. But I couldn’t admit defeat yet.

I finally made it to the top and rejoiced. I felt proud of myself and thoughts of being sick were set aside for one more day. I wouldn’t have been able to do this if I were really sick. In retrospect, I can hardly believe that I returned from the UK and immediately played shows in Atlanta and Birmingham, then the next weekend in North Carolina and South Carolina. Then I somehow managed to do a grueling 2 and half week tour in the Northeast, playing a show almost every night and teaching a harmony workshop. And every day I was zonked out in the van, barely able to lift my head, barely able to eat. I’d garner my strength for the show and give my all during those 90 minutes, (though I coughed through a good portion of it) but I felt scarily disconnected from my body. My midriff looked foreign to me, like I was in one of those books where you can flip the top, middle, and bottom portions and create the policeman wearing a pink tutu with ostrich feet. I was the Asian girl with E.T.’s belly wearing tights and cool Fluevogs. I stopped looking at myself in the mirror.

It made me think about what I would want to hear if I were about to make my transition: (for my own sanity, I like to think of death as a gateway into more life, just in a different form) the good memories, fun times, the love and laughter. Because doesn’t it all boil down to the love we share, what we give to each other and what we take in, and being able to see each other through the eyes of Source? (or God if you want to call it that?) That’s the one big thing that I realized the day I was going to receive my diagnosis in that hospital in Jersey. I was freaking out, shaking violently underneath that swath of hospital gown. And underlying that fear was the profound certainty that I wasn’t done with my life–I still wanted more. I realized that music was my absolute calling and how lucky I was to have found Ty, Nate, and JJ. How lucky we were to be able to create together. As I focused on each of them, and then on my parents and my other dearest friends, tears of joy streamed down my face. In that moment, I basically experienced the opposite of fear: love. It instantly lifted me to the grandest, most comforting space I have ever been simply because I was allowing myself to bask in its eternal truth. I was one with the Universe. (I hope I don’t sound crazy!) My mood completely transformed, and I think I even glowed because I was vibrating on such a high level.

Five people in white coats came in just then to give me my diagnosis. (It was the oncologist, the resident, and 3 medical students–I was quite the teaching example.) I shone in a state of grace and acceptance. I was ready.”

Just click here to follow her story on her blog.

Nothing else to say really. Be aware of life’s highs and lows, either way keep learning from your experiences.

Be a work in progress.

Less is Enough.

20 Dec

My husband is a great sport when it comes to allowing me to decorate our home. As you probably know by now, I love Shabby-chic, Victorian era antiques that don’t scream masculinity. Anyway I have been trying to adopt a middle ground lately by getting rid of things we don’t need.

This is not an easy task because our house is trés petite and decor takes on the effect of clutter when it appears displayed on top of itself. Anyway, I am starting to pare down and I am proud to say I am making a bit of headway.I have also been adjusting to life post “dream job.” It has been a hard 5 months of searching, interviewing, interning and consulting, failing, breaking through and everywhere in between. I was very used to having the right answers and or controlling my outcomes to get what I wanted and for a while I took it personally that this was happening to me.

I felt like life was progressing without me and I was stuck back in a fog of what should I do? Who do I want to be now?But like the removal of clutter from our home, I started (inadvertently) reorganizing my head space.  Life isn’t smooth, fair or easy a lot of the time. Taking what you have, continuing to grow and learn through experience and still coming out wanting and trying to be the best version of yourself is the greatest measure of success.

I have grown immensely during this time and vow to re-emerge from the ashes a better wife, friend, sister, daughter, employee and person.My husband passed on this blog post taken from Zen Habits. Please read it and then seek to find what rules work best for your life.

Luella says…Courtney says.

 

Lessons from Less

By: Courtney Carver of Be More with Less.

When I was 16, I wanted more. When I was 24, I wanted even more than that. So, I worked harder, earned more, spent more, to have more, only to owe more. I was exhausted at the end of the day and tired when I woke up most mornings. I ate on the fly, fell behind, ran late and could never catch up. Sound familiar?

I thought everything I was doing was for a better life. I thought what I was doing was normal and right. I had become so used to bills in the mailbox, and feeling rundown, that I didn’t know anything was wrong. So, how did I go from wanting more, more, more to craving less? I would love to tell you that I woke up one morning a changed person, but that’s not the way it went down. Even though I had begun to make small changes, I needed a wake up call … and it had to be really loud.

On July, 7th 2006 I was diagnosed with relapsing remitting Multiple Sclerosis. That was my wake up call, and to say it was loud is an understatement. The diagnosis was nothing short of traumatic. I didn’t have enough information to take action. I only knew enough to be really scared. I had so many questions. Could I still ski with my family? Would I be able to help my daughter with homework? Would I even be walking in a year?

No one had the answers to those overwhelming questions, so I had to focus on what was most important: my health and my family. Nothing else mattered. If I had moved forward with these big questions and fearful thinking, my daughter and husband would have been so worried. I realized that if I started thinking differently, so would they. My questions went from, “What is this disease going to do to my body and mind?” to “How am I going to reverse MS?”

The answer to my question was change. Small shifts and big change were necessary to become the best possible version of myself. When I started making changes in my life, I didn’t know that they would lead to minimalism, but they did. In fact, while the changes I made were fighting MS, they were also redefining my whole life. The changes I made are not all essential in the life of a minimalist, but they are all essential to my minimalist lifestyle.

What I did to change my life:

I became a vegetarian. Research shows that MS patients, and people dealing with other autoimmune conditions that eat fewer saturated fats and “inflammatory foods” maintain better health. (I would challenge that this goes for most everyone.) Giving up meat was one of the best ways I could really “do something” about my new diagnosis. I stopped eating meat to achieve better health.

When I started my vegetarian journey, I started reading. I read about raising animals for meat. I read about factory farming. I learned about the impact of our actions on our bodies, animals and the earth. By really opening my eyes and heart to how meat was put on my plate, I lost my appetite for it. I was motivated by health and changed with compassion.

I fell in love with yoga. Practicing Yoga gives me strength, flexibility, focus, peace of mind and freedom from fear. I want to keep my body strong, and my mind calm and focused so I can effectively fight this disease and take care of my family. While I am in search of less, I want to be more sensitive and loving, more adaptive and more resilient. Yoga gives me that, too.

I got rid of my stuff. While I always felt compelled to put something on an empty surface, I have come to love an empty space. It takes living without it to realize how clutter affects your life and takes away from your freedom and creativity. I am reminded of that every time I walk into my kitchen and instead of seeing a cluttered counter, I see sunlight streaming in from the kitchen window. I am still letting go of my stuff and feel lighter everyday.

I decided to live without debt. You may not think that your bank account can affect your health, but considering money can cause great stress, and stress can make you sick, it only makes sense that poor money management equals poor health. My husband and I made the decision to be debt free, and paid off our last debt this summer except for our house. What will we do with our money now that we don’t have any monthly payments? Whatever we want.

I hung up the phone. I do not use my phone when I’m driving anymore. I don’t text at red lights or make calls on the back roads. I can remember too many times where I would arrive at a destination and not remember how I got there because I was so involved in a phone call. Admitting that I had essentially been risking my life and the lives of other drivers wasn’t easy, but it was necessary to make the change and the commitment to be phone free in the car.

Another benefit is that now, when I pick my daughter up from school, she has my full attention. She doesn’t have to compete with business or other phone fueled distractions. I am there for her.

I redefined better. As I mentioned before, all of my bad habits came from wanting something better, something more. In the changes I’ve made, I have redefined what better means to me and my family. The health and happiness of my marriage and family comes before everything else. My husband and I have decided that “more” isn’t the answer for us.

Now at 41, forever changed, and virtually symptom free, I am becoming me. I know I haven’t figured it all out but am content. I don’t make as much as I used to. I didn’t take a big vacation this year or make any big purchases, but there is no doubt that I am happier. Less speaks to me. Less lets me love more deeply and less lets me really be me.

My wake up calls have become more subtle, but because I have the time and space to pay attention, I hear them loud and clear. When I first started to practice doing less and being more, I discovered Zen Habits. It was another wake up call, but it sounded like a whisper, “You can do this. You can change.” It is not a coincidence that Leo Babauta’s story of change changed me. I was ready to listen, ready to change.

The biggest lesson I’ve learned is that less is enough. Of course, I am still learning, still changing and still a work in progress, but now it is my turn to inspire change with my story.

Use Courtney’s story as a positive wake up call and get your outlook in order as we enter the new year.

No matter how deep the hole feels, there is ALWAYS a way out. Stay positive and believe in yourself.

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